important to find ways that you can pull yourself up and most
importantly, pull yourself FORWARD. When I was first diagnosed, my
T-Cell count was 345. That was very upsetting for me because it meant
my T cells were at a low level that would require me to start
medication very soon. If you look back at some of my blogs in the very
beginning of my diagnosis, I wrote how I wanted to stay of HIV
medication at least until I was out of college. Unfortunately, because
my T cells lingered in the 350 range at my next count, medication was
something I needed to start if I didn't want to experience severe
damage to my immune system in the next few years.
As most of you know from reading my blogs, T Cells are the important
white blood cells that fight infection. When you have HIV, your T
Cells are killed off, and after you get below 200, you have AIDS. A
normal range is between 500-1000 T Cells. Well today I found out that
my T Cells have climbed to 521, which means I am at a normal, healthy
range. Although I didn't feel many effects of HIV, it feels so good to
know that I am considered normal again. Granted its a low-normal, none
the less its a goal I have wanted to reach and had no idea I could do
it so quickly. HIV is not just a physical ailment, it is very mental
as well. To survive and thrive with HIV, you have to be comfortable
with your status and health. Today, thursday, I am the most
comfortable with my status as I've ever been. Even when I thought I
was HIV-, I wasn't very comfortable with my status because I didn't
KNOW my status. I thought I did, but unless you have that paper in
front of you declaring you infected or not infected, your status is
merely suspected. I'm not happy I'm positive, in fact I despise the
fact that HIV has decided to take residence in me. Given the
circumstances though, I must find pride in my life, in my disease.
Everytime I get a better piece of news, a good result, or wake up
feeling healthier than the day before, I get a small win for myself.
It means I'm fighting the disease, and I'm fighting it hard. Its
taxation on my immune system will not come without representation.
As happy as I am today about my T Cells being up by nearly 200 since
February, I did have a set back. I have been experiencing some really
bad stomach issues for almost three weeks now. It has gotten to the
point some days where I feel like its robbing me of my freedom,
robbing me of my choice to pick what I eat (and instead go with
something that will be less reactive to my stomach). I thought it may
be my meds, but the doctor I saw today doesn't think so. She seems to
think that I most likely picked up a parasite while camping over the
4th of July and swimming in untreated, forest creek water. Fortunately
if it does appear to be a parasite I can have it treated with little
problem. Its the mental part though that upsets me. I've been camping
and swimming up in that area since I was just a few weeks old. So what
does this mean? Will I have to limit what I do, limit my life? These
are the things that pass through the head of an HIV positive 22 year
old. I want to be able to live unconditional, unrestrained. Yet, I
have to double think some of these things though. I refuse to let HIV
hold me down though. This disease has reshaped my life in so many
ways, good and bad. I am so much more self-aware and aware of those
around me. I strive to live a healthy, productive life in a way in
which I never have before. Yet, it has also brought a dark shadow that
sits heavily upon my soul. Gone is innocence and purity. I have a
comprehension of life that sometimes is vilified with terror. Finding
a balance between a healthy reality and an overzealous fear of death
is hard, sometimes nearly impossible. It is something I will do every
day though, until I die.
--
Sent from my mobile device
Whenever you feel up to it lets go to the bay or something. I can tell you and you can tell me whats been going on with our lives. I do miss you. and i have a lot to say, and your usually anything but short for words. :)
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